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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 357
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Nice piece on the BBC News site about this time of year and RA http://news.bbc.co.uk/1/hi/health/8418931.stm
Hope everyone is managing OK HUGS Jo. 2012 Fundraising for the National Rheumatoid Arthritis Society (NRAS) http://uk.virginmoneygiving.com/RoboJo
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Thanks for posting this Jo. I must admit I didn't like going out during the snow- it was ok til it froze but the pavements weren't gritted and it was almost impossible to walk on them. It was a case of risk a fall or walk in the road!
I managed to get my shpping done ok and coped with a visit to the family yesterday although I felt drained and couldn't sleep last night.
Having a good rest today though. Hpe yu coped ok
Maria
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Rank: Advanced Member
Groups: Registered
Joined: 12/5/2009
Posts: 90
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Thank you for that, Joanne. The article is spot on, how I have been feeling. It is good for all of us, when our illness is described well. There are so many misconceptions about RA.
I am so grateful, I don`t live in Siberia or other snowbound countries. I did not go out for 3 days, I was not going to risk to fall, as my ankles are so fragile, and the least little bump in the road can affect my balance. Today hubby and me were invited for lunch at my son`s house. He lives in Hertfordshire with wife and 2 children (50 mins drive from us). His driveway was like an ice rink, and our son had fallen right on his back in the morning, so when we arrived, he came rushing out to warn us.
I read about poor Lylie falling. I feel really sad about that. She has gone through so much this year.
Wishing you all a healthy and safe New Year.
Love Merete xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Thanks for that, Jo. I haven't been out for days, I'm so scared of falling over. The snow still hasn't thawed out here, so I can't risk it. I was hoping to go out with the family on Christmas day, but my scooter wouldn't work in the snow.
Lyn
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Rank: Member
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Joined: 12/7/2009
Posts: 29
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Its not too icy here but being clever I managed to find a small patch and went flying. In my case I was lucky as I landed on my backside, which gave me a good cushion, but getting up again was an epic.
Hope Lylie feels better soon
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 74
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Hi, what a great article, I agree with everything written, I haven't been out of the house since 24th december, what with the snow and ice I just know that I will fall over, it seems that I am very accident prone now, the gp wanted a blood test but told me not to go out, he sent the district nurses instead, they are forecasting more snow towards the end of the week love Kimxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
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What an excellent article; it pinpoints so much that most of us are feeling. Thanks for the link, Jo.
Anthea x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 312
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Dear Jo, I loved the article too! I have not been out for days and stepped outside the front door to look at my little garden at lunch time and went straight back in again! I am 52, so things like meeting mates to go out don't bother me much now, but when I was first diagnosed at 37, I really did turn down a lot of invitations to socialize. I felt then that my friends did not really understand what my illness was like at all. They got "blank" expressions when I tried to explain. Also, needing to sit down in a comfortable chair and not stand up all night or sit on the floor like other people who were my age made me feel "different" and look lazy! Thanks for posting the Article. Best wishes, Fiona 
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Rank: Member
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Joined: 12/23/2009
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I haven't posted anything for a while but reading all your "posts" I realised how isolated I had become and it is really good reading all your comments - until this latest cold weather I thought I was coping well with my RA, but now my wrists , feet and toes and elbows ache. I was beginning to feel quite sorry for myself. This was my first Christmas since being diagnosed with RA and boy have I felt it. I have tried to be "normal" but it's the little things that I can't do, can't walk far, terrified of the ice - and when I do go out everything is strapped up. My Rheumy has recently increased my MTX and I am noticing my hair is getting thinner (my one fear) anyone got any advice?
I am not in work today because of the snow here in Wales and I shan't be going in tomorrow either - sorry to be such a pain but I sometimes wish it would go away the dreaded RA.
Anyway Happy New Year to you all.
xx Jane
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Sorry to hear you are feeling bad Jane. I will probably take a while for the increase in mtx to kick in. I've not had any problems with hair loss but I'm sure that I've seen posts on here that have said people have managed to reduce it by increasing their folic acid - some people take it every day apart from metho day. Hope you manage to stay warm while you are off and post on here if you get bored! Take care.
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Hi jane
You're not being a pain, we are here to listen and help if we can. If you've not had RA very long, then it will be a nasty shock to you in this weather. It's difficult to get out, but you're not on your own, I haven't been anywhere for days, not even to the local shops. We've had numerous social events cancelled, and I haven't seen my daughter since Christmas day, as she and her husband have both had chest infections.
If it wasn't for the forum, the phone and texting, I think I'd go up the wall!
Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Jane, You`re not allowed to say the "sorry" word on here - we all have been where you are, and you can talk to us anytime. The weather is really horrible, and I think I will soon be going stir-crazy! Some people increase their folic acid, I think, to help with hair-loss, like Julie suggested. It might be worth ringing your rheumy nurse. Take care, & feel better soon, Kathleen x
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Rank: Advanced Member
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Joined: 12/3/2009
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I have 5mg Folic Acid daily to help with hair loss. Also use thickening hair products from John Freida and take a daily Silica tablet from Holland and Barrett.
Never, ever say sorry! We all feel low sometimes and we all understand.
Take care,
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Oh Jane, we all know exactly how you're feeling. It takes time to accept RA and the snow has isolated many people- it is the PITS!
Do try an extra folic acid and the silica, they are great remedies!
Love,
Amanda
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Rank: Advanced Member Groups: Registered
Joined: 12/4/2009 Posts: 856
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Hi Jane
Sorry to hear you're suffering. I've had exactly the same thing-feet, elbows, wrists all very painful and by the end of the day I can hardly walk. My knees are also much more painful than usual and my right one is very swollen. I was beginning to think it was just one of those bad spells that we go through from time to time, but now you mention it, it has been since the really bad weather started last week. We've had quite alot of snow here in hertford, and the pavements and minor roads are only just starting to thaw. I've managed to get to work but it's been a struggle and some days i was terified of going out on the ice.
I'm on sulfasalazine and have been suffering from hair loss. It's really upset me as I normally have thick hair, which grows rally quickly. Luckily, bcause of this, it's not too noticeable and my hairdreser is so good.
I take 5mg folic acid a day- been on it for about a month- I haven't noticed any significant improvement in my hair but my nails aren't as brittle as they were before I started taking it.
I did't know about the silica though, so will try it.
If you're recently diagnosed it can take a while for the meds to kick in- I reached the point where I thought things would never improve- but they did !
Hope you're feeling better soon- maybe things will improve for us when the weather improves.
Try to get as much rest as you can- and give yourself lots of tlc
Hugs
maria
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